APS Support UK News

Our annual Patients' Day was a roaring success this year, with 83% of the attendees rating it as 'excellent'. However, we know that lots of you can't make it due to work/family/health/geograp hic commitments, so are pleased to let you know that you can now listen to a free You Tube recording of the speakers along with the slides of their presentations.  We hope you find it useful: https://www.youtube.com/playlist?list=PLsOlR9d1jRjQMQJLidbvD4aQfBiUWOA7U&feature=mh_lolz

You are invited to join us at the national Patients' Day being held on the afternoon of Wednesday 14th May 2014 at St Thomas' Hospital, London. The cost of Patients' Day is £20 for members of the Hughes Syndrome Foundation charity, to include you and a guest, and £40 for non-members. If you want to learn more about this unique opportunity and reserve your place, please visit our website and register online .  

Thanks to actress Holly Matthews, the popular BBC1 series Casualty featured a storyline in which APS was prominent.  It was made clear it was a serious blood clotting disorder and this storyline dealt with pulmonary embolism, miscarriage and the possibility of it being hereditary. Click to see the episode Blood is Thicker than Water: http://www.youtube.com/watch?v=_d0ThdYx7uY&feature=youtu.be&hd=1

Not wishing to panic anyone, but a recent study has found that if you had shingles under the age of 40, your risk of stroke and heart attack increases dramatically. This is especially pertinent as our recent Health Unlocked online poll showed that 38% of people with Hughes/APS had suffered shingles. The main thing you can do is to make sure you're on blood thinners and reduce your stroke and heart attack risks. Click here to read the story

Visit our online shop where you can now buy the transcript of the 2013 Patients' Day plus books, guides and great gift ideas. Click here to start shopping

Thanks to all the lovely people who attended our Patients' Day - it was the busiest ever and, from the great feedback we received, everyone seems to have found it very useful. We know that not everyone can attend for various reasons so we have produced an audio recording of the day so you don't miss out - please feel free to share this if you think it could help anyone else: http://youtu.be/7dKM-DjQIuo

We are delighted to invite you to our national Patients' Day being held on the afternoon of 14th May 2014 at St Thomas' Hospital.  Tickets cost £20 for HSF charity members and £40 for non members.