Visit our online shop where you can now buy the transcript of the 2013 Patients' Day plus books, guides and great gift ideas.Click here to start shopping
Thursday, 23 May 2013
Thanks to all the lovely people who attended our Patients' Day - it was the busiest ever and, from the great feedback we received, everyone seems to have found it very useful. We know that not everyone can attend for various reasons so we have produced an audio recording of the day so you don't miss out - please feel free to share this if you think it could help anyone else:
Wednesday, 20 March 2013
Tuesday, 19 March 2013
This website gives easier access to information for patients and hopes to improve their everyday life.
The Hughes Syndrome Foundation would like to thank the National Lottery whose funding made this possible.