This panel of experts will be drawing up draft guidelines which will be developed into best practice treatment for those with CAPS, so it’s important that we patients have a voice there if possible.
The requirements for the patient representative are:
• you have a good command of English
• you have some experience of CAPS/APS
• feel able to advise on patient views and preferences
• are able to travel to Barcelona, Spain on Wednesday 27th April 2016
• can dedicate a few hours to help draw up the guidelines
However there is no need to be an expert – they need a PATIENT’S view not a doctor’s or healthcare professional.
If you’re interested, please contact urgently